Sam’s medical status: Erin said the bronchoscopy went well today (Saturday). They checked the fluid coming from Sam’s lungs and there is no infection. His skin graphs also look good after removing the wound vacuums. Other than that, he had a really good day.
Erin has a docking station for her iPod (another gift from a local charity) and she plays music for Sam all the time. She said she was “drumming” on him today to the beat of the music (to stimulate his mind…not to irritate him!) and he was responding again with lip, eye and eyebrow movement. The movement all seems to be coming from the right side of his face. Erin said he keeps giving her the “Elvis look” when he’s responding to the music.
Callie’s Video of Sam and Erin: My niece, “Callie” is 14 and lives in Orangevale California about fifteen minutes from us. Both my daughters have baby-sat Callie and her brother Joey all their lives. There is a special bond because of that and also because Callie’s brother Joey is a special needs child with Angleman Syndrome—Joey adores both Erin and Sam.
I just gave you a REAL short version of the cousin story, but as I said, there is a very special bond between all of them. Callie sent me a video of some pictures of Sam and Erin with the music to “Angels Among Us”…and being a computer savvy kid, has posted it on YouTube. Some are pictures from this blog and some, I’ve never seen before. So—-here is the embedded version with love from Callie. Just click on the “play” control to view the video (I always have to hit it twice for some reason). Callie—Thank you for the video…we love you!:
I’m on my way to Bethesda to be with Erin and Sam for a week so I’m going to publish the blog entry for Sunday a little early. I’ll be there from August 26th through September 2nd. I’m assuming I will be able to continue the web blog entries from there. If you don’t hear from me on Monday, then I’m having problems accessing the Internet from the hospital. Hopefully I’ll be able to get on line without any problems.
Continue to pray for a Miracle for Sam!